Government Review Advocates Early Support for Autism and ADHD

This personal experience underscores the importance of timely support as the NHS evaluates changes in how autism and ADHD assistance is provided. An independent review commissioned by the government suggests that people in England should receive support based on their needs without waiting for a formal diagnosis, potentially easing the long wait times for assessments.

Currently, demand for assessments is surging, with over 560,000 ADHD referrals and 254,000 autism referrals pending in England by the end of 2025. Long wait times can leave individuals struggling without understanding the root of their difficulties or receiving necessary assistance.

Mental health issues, such as anxiety and depression, are prevalent among those with autism and ADHD, complicating their situations further. Early support could provide relief for many while waiting for formal assessments.

As part of a research project called MINDS (Mental Illness, Neurodivergence and Distress), 25 adults with autism, ADHD, or both shared their experiences with mental health support from healthcare providers. Many reported that receiving a diagnosis helped them make sense of their experiences and communicate their needs more effectively to others.

However, the review recognizes the potential downsides of overstretched NHS services, which might limit access to assessments. For instance, in West Yorkshire, a two-year wait has been introduced for routine assessments by independent providers. While earlier support could relieve some pressure, it should not deter the availability of formal assessments.

Additionally, the findings revealed that a diagnosis does not guarantee access to appropriate mental health care. Participants noted challenges in articulating their needs to healthcare professionals and faced issues in navigating referrals. Many were directed to various services only to be deemed ineligible for support.

Some received cognitive behavioural therapy (CBT), which can benefit those with autism and ADHD, but others found certain techniques unhelpful or counterproductive. One autistic participant described anxiety-inducing situations in therapy as feeling like an "assault" on their nervous system, highlighting the need for therapy to consider individual sensory preferences and experiences.

National guidance already recommends adapting therapies for autistic adults, yet the findings suggest a broader need for varied support options. Years of struggle to obtain help often left participants feeling neglected.

The government’s proposal to allow more people access to support before diagnosis could increase demand on GP services. It is crucial that GPs are adequately trained and resourced to identify and address the needs of these individuals effectively.

The proposal presents an opportunity for improved care for those currently facing long waits. Ensuring that appropriate help is available prior to and following a diagnosis will be essential for the initiative's success. As expressed by one participant who felt abandoned after their diagnosis: "You just get to the end of the diagnosis and then you fall off a cliff. It’s a bit like a conveyor belt in a supermarket without a trolley at the end." Addressing these gaps in support is vital for the well-being of individuals seeking help.